ATLANTA, Ga - Out of six major heart defects, Nick May had four.
Nick May was born April 5, 1989 with hypoplastic left heart syndrome (a three chambered heart, he was missing the left lower chamber), transposition of the great vessels, coarctation of the aorta, and a septal defect.
“We had no idea Nick had a heart problem until after he was born. He looked perfect but soon the doctor and nurses noticed he was having trouble breathing,” said Nick’s mother Susan May.
On April 10, five days after Nick was born, he had his first open heart surgery. His heart was the size of a walnut and he had a 50% chance of survival. Dr. Kirk Kanter of Children’s Healthcare of Atlanta at Egleston, performed the Norwood Procedure, which was supposed to get Nick through the fast growth years between birth and two years old.
At three and a half months old, Nick went back in the hospital for a heart catheterization. It was determined that his right pulmonary was too small. Again, Nick had to have surgery. After two months in the hospital, he came home developmentally delayed and had to relearn to eat. “I fed him through an EG tube again, but this time he was also fed by a machine all night long. It took him six weeks to grow strong enough to eat everything he needed by mouth during the day.” Continue reading
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