PSC Partners Seeking a Cure and PSC Support Announce a Call to Action for Medical Stakeholders to Better Understand and Diagnose Rare Liver Diseases

PRESS RELEASE ROCKET 

Nonprofit patient group to educate on Rare Liver Disease Diagnosis at The Liver Meeting 2016

Greenwood Village, CO (PRWEB) November 11, 2016 

PSC Partners Seeking a Cure, a nonprofit organization that provides education, support, and research funding for the rare liver disease primary sclerosing cholangitis (PSC), and PSC Support, the UK-based nonprofit organization, have announced a call to action for medical stakeholders to be cognizant of the value to patients of better understanding and diagnosis of rare liver diseases. PSC Partners Seeking a Cure will be spearheading this patient-led initiative, with the support of medical health professionals treating liver diseases, at The Liver Meeting, the annual conference of the American Association for the Study of Liver Diseases (AASLD), in Boston, Nov. 11-15, 2016.

The Liver Meeting, which attracts more than 9,500 hepatologists and other health professionals to exchange the latest research and news on liver diseases, will give PSC Partners Seeking a Cure a platform to address a critical issue in the field of hepatology: the consequences of misdiagnosing rare diseases and thereby providing inadequate treatments and disease management for patients, leading to missed opportunities for participation in groundbreaking clinical trials. With the recent renaming of another liver disease, primary biliary cholangitis (PBC), formerly called primary biliary cirrhosis, an opportunity has arisen to alert clinicians of the potential for confusion and stress the importance of correctly identifying these two distinctly different bile duct diseases, PBC and PSC. Continue reading

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